…what NOT to do…

Eating disorders kill. Even if you don’t die, you won’t live. Prevention and early intervention are critical. What happens if you let an eating disorder fester and take root before seeking treatment? Or then, what happens if the therapist has no boundaries? Or ethics? Or fails to outlive the therapy? Or if the eating disorder clinic clinic lies to you, takes advantage of your vulnerability, & drops you back into your sick world without any referrals or aftercare or follow-up or recompense or even listening? I’ll tell you:

Your peers will be paying off their homes and about to retire to spend time with their grandchildren. And there you will be, in your fifties, renting a temporary apartment, usually no more than 3 figures in gross fiscal assets, owning nothing more valuable than the 20-year-old car that gets you to the job you can’t retire from for at least 15 more years if you have any hope of paying off the student loans for the bachelor’s degree that took you 23 years to complete. And it’s a “job” – not a career – and you’ll sometimes need more than one to keep up with your food binges, medical bills, and all the different clothes for all the different sizes of you. Your marriage will have failed because your spouse could only love a sick diminished spineless person and you had to go off and fight for health.

At the same time, you’ll be far ahead of your peers when it comes to aging. You’ll have named a POA by your 30s, your church as the beneficiary of your retirement by your 40s, & despite lacking inheritors or property get your living will done by 50, for there’s no spouse or dependents. You’ll have lost at least a couple of teeth. You’ll be on more prescriptions and over-the-counter medications than your elderly neighbors in assisted living (because you damaged your immune, cardiovascular, and endocrine systems.) You’ll own your own walker, back brace, nebulizer and blood pressure cuff. You’ll take stool softeners and have thrown away your wadded up underwear not just at home but public bathrooms in several different cities because you pooped your pants (laxatives broke your digestive system.)

This doesn’t sound like an eating disorder?

But what about being skinny? (more on that in the first blog post)

Oh, yeah. Your metabolism. It takes the hardest hit. Today, you literally, actually, GAIN weight on a paltry amount of food that would have left you emaciated just ten years ago. You can easily remember when you desperately wished you could have controlled your intake the way you do, today, when eating has become such a burden and all food so loathsome that you would pay outrageous sums of money to be able to hook yourself up to a nasogastric tube while sleeping, to avoid it.

Anyway, even if you could slim down it doesn’t matter and it has never mattered because you’ve never been able to see it and you never will.
(Remember: This Is A Real Mental Illness.)
No matter how thin you get, you will never look bony enough. Maybe, perhaps, after years of patience, when you look back at photos of your lower weights, you’ll see that you were kind of a little bit thin-ish. Sort of.

But by this time you’ll have learned that it works the OTHER way, as well:

you ALSO cannot see it when the BMI charts say you’re (way past “overweight”) obese.

The one thing that may have caused you pause in those younger years is if someone had told you that the body part you hated most, your abdomen, would eventually perpetually protrude and stick out for the rest of your life because it will quite literally be full of crap because of what you did to your alimentary canal – some years it was a wonder it didn’t atrophy for lack of use – some years all it had to pulse through was liquids – some years straight sugar and fat – some years it was so overworked you’re lucky it didn’t collapse from exhaustion – and mostly you’re lucky none of it ruptured from the thousands of times you forced it to reverse it’s contents after engorging.

Enough good enough therapy with some good enough support earlier on may have done some good.

Four decades later, maybe this will do someone else some good. It’s certainly worth a try.

…about the background art…

Created Thursday, June 27, 2019, in afternoon group, from 3:15 to 4:45. The weekly group was called “self-run” (meaning the patients ran it.) Because to this day I resent the time, money and energy that group sucked away (though a great idea for evenings/weekends) I tried to make it worth their while when I took my turn that day. I ran to the craft store & purchased over a $100 in supplies, designed the panels, put my wireless speaker in the middle of the group room for groove tunes, hung soft twinkling lights, and got permission to open the patio doors to let in the summer breeze.

(( they said it was their favorite group ))

we donated it to say “we were here, we have names, we matter” (see minute 0:39-0:41: https://www.13abc.com/content/news/Toledo-Center-for-Eating-Disorders-saving-lives-one-meal-at-a-time-512937251.html )

… about the grammatically terrible title …

Once upon a time a therapist violated every boundary in the book (yes, I read the book) except the sexual boundary, then retired and changed her research focus from eating disorders to:
“Termination of psychotherapy clients – how and how not to do it.”

Based upon my exit from her office, I can attest that her skill set was desperately in need of research. Yet I blame myself. I had asked her at one point how we might go about it, and she said, “I don’t know.”

And there you go. This therapist wasn’t the only experience I had in treatment that did more harm than good. There was also the clinic that falsely advertised aftercare that was nonexistent. There was the therapist who died of a brain tumor. The insurance that ran out. Et cetera.

The rule of thumb about “therapy” is: you get out of it what you put into it. The reality of it is: sometimes you just slip through the cracks. The only way I can think of to bring some good out of it is tell my story and hope some other patient, somewhere, somehow, learns when they should run away, fast. Maybe there’s even a therapist out there willing to learn a lesson.

Telling my story will give you a good review of a current treatment center, and a picture of one in the late 1980s, so while I’m at it I plan to incorporate in-depth reviews of the online profiles of many other treatment centers.

… references (or: “a few books I read”) …

  • Andersen, Arnold, MD, with Leigh Cohn “Stories I tell my patients: 101 myths, metaphors, fables and tall tales for eating disorders recovery”
  • Anderson, Laurie Halse “Wintergirls”
  • Antieau, Kim “Mercy, unbound”
  • Apostolides, Marianne “Inner hunger: a young woman’s struggle through anorexia and bulimia
  • Ballard, Alexandra “What I lost”
  • Beard, Amanda “In the water they can’t see you cry: a memoir”
  • Brown, Harriet “Brave girl eating: a family’s struggle with anorexia”
  • Bruch, Hilde “Eating disorders: obesity, anorexia nervosa, and the person within”
  • Bruch, H. “The golden cage: the enigma of anorexia nervosa”
  • Brumberg, Joan Jacobs “Fasting girls: the history of anorexia nervosa”
  • Chepaitis, Barbara “Feeding Christine”
  • Claude-Pierre, Peggy “The secret language of eating disorders: how you can understand and work to cure anorexia and bulimia
  • Cohn, Leigh “Eating disorders: a reference sourcebook”
  • Daniels, Lucy “With a woman’s voice: a writer’s struggle for emotional freedom”
  • de Rossi, Portia “Unbearable lightness: a story of loss and gain”
  • Dunkle, Clare B. “Hope and other luxuries: a mother’s life with a daughter’s anorexia
  • Dunkle, Elena and Dunkle, Clare B. “Elena Vanishing: A Memoir”
  • Eliot, Eve “Insatiable: the compelling story of four teens, food and its power”
  • Forrest, Emma “Your voice in my head”
  • Garfinkel, Paul, and David Garner “Handbook of treatment for eating disorders” Gaudiani, Jennifer L. “Sick Enough: A Guide to the Medical Complications of Eating Disorders
  • Gold, Tracey “Room to grow: an appetite for life”
  • Gottlieb, Lori “Stick figure”
  • Greenfield, Lauren “Thin”
  • Gura, Trisha “Lying in weight: the hidden epidemic of eating disorders in adult women”
  • Hanauer, Cathi “My sister’s bones”
  • Hautzig, Deborah “Second star to the right”
  • Henke, Roxanne “Becoming Olivia”
  • Hollis, Judi “Fat is a family affair”
  • Hornbacher, Marya “Wasted, updated edition: a memoir of anorexia and bulimia”
  • Johns, Nicole J. “Purge: rehab diaries”
  • Kaslik, Ibi “Skinny”
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  • Kirkland, Kelsey “Dancing on my grave”
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  • Levenkron, S. “The best little girl in the world”
  • Levenkron, S. “Kessa”
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  • Liu, A. “Gaining: the truth about life after eating disorders”
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  • McClure, Cynthia Rowland “The monster within: overcoming bulimia” McCurdy, Jennette “I’m glad my mom died”
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  • Miller, Caroline Adams “My name is Caroline”
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  • O’Neill, C. B. “Dear Cherry: questions and answers on eating disorders”
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  • Palmer, Catherine “The happy room”
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  • Pierce, Bethany “Feeling for bones”
  • Price, Nora “Zoe letting go”
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  • Rio, Linda “The anorexia diaries: a mother and daughter’s triumph over teenage eating disorders”
  • Ronen, Tammie “In and out of anorexia: the story of the client, the therapist and the process of recovery”
  • Ryan, Joan “Little girls in pretty boxes: the making and breaking of elite gymnasts and figure skaters”
  • Sacker, Ira M. “Regaining your self: breaking free from the eating disorder identity: a bold new approach”
  • Sacker, I. M. “Dying to be thin: understanding and defeating anorexia nervosa and bulimia — a practical, lifesaving guide”
  • Sargent, Judy Tam “The long road back: a survivor’s guide to anorexia”
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  • Smith, Chelsea “Diary of an eating disorder: a mother and daughter share their healing journey”
  • Snyder, Anne “Goodbye, paper doll”
  • Spechler, Diana “Skinny”
  • Taylor, Kate M. “Going hungry: writers on desire, self-denial, and overcoming anorexia”
  • Valette, Brett “A parent’s guide to eating disorders: prevention and treatment of anorexia nervosa and bulimia”
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  • White, Kate “So pretty it hurts”
  • Woolf, Emma “An apple a day: a memoir of love and recovery from anorexia”
  • Yalom, Irvin D. “The Gift of Therapy: An Open Letter to a New Generation of Therapists and Their Patients”
  • Yalom, Irvin D. “Love’s Executioner”
  • Zgheib, Yara “The girls at 17 Swann Street”